A teen from Rockland County wants to help others battling rare diseases after his own fight. Carlos "Coca" Bernard has ...

A Vancouver Island mother says she’s heartbroken after the B.C. government refused to reinstate funding for the only drug ...

A Sterling family is seeking community support after a "perfectly normal day" changed their lives forever. Jeremy Hunter suffered a severe stroke May 20 that resulted in emergency surgery to remove a ...

This Grade Two learner at Laerskool Rayton suffers from a rare disease called Fanconi anemia (FA), a rare and inherited ...

Patients with rare diseases are increasingly working to find and fund their own cures. But should they have to?

Video Quality Speed 00:00 03:41 Brewers draftee Marco Dinges survives near-fatal bout with rare disease to live out his baseball dreams (WLUK) Unfortunately, he strained his hamstring last Sunday and ...

Senators made the right decision for America's most vulnerable patients ― now, the House must follow suit. The ORPHAN Cures ...

Lyssavirus is transmitted from infected bats to humans when bat saliva containing the virus enters the body through a bat bite or scratch.

Michael Armellino first heard of Williams syndrome when his partner’s granddaughter, Maelyn, was born with the rare genetic condition 10 years ago. A simple internet search laid out that she could be ...

Bruce Leuchter, CEO, Neurvati, discusses the vital role of public participation in healthcare policy, highlighting how ...