Patients with rare diseases are increasingly working to find and fund their own cures. But should they have to?

Rare Disease Day is celebrated on the last day of February, raising awareness for the 300 million people affected by rare diseases. It aims to improve their lives through equity in healthcare and ...

Rare Disease Day 2024 is an important opportunity to raise awareness about rare diseases and the need for research, diagnosis, and treatment options like orphan drugs. Learn the significance of ...

On Rare Disease Day, we spoke to chief executive of the Genetic Alliance UK, Jayne Spink, about using the patient voice to tear down barriers to building evidence for, ...

Hutchinson noted that several sites, including the Peace Bridge, Niagara Falls, and the Electric Tower building downtown, participated in the #LightUpForRare initiative to raise awareness by ...

Rare Disease Day 2025 at FSU provided a forum for university and state leaders to lay out the future plans for IPRD. The event was also a platform to share the work already underway at the ...

NEW YORK, Feb. 28, 2025 /PRNewswire/ -- Mediaplanet today announces the launch of its Rare Diseases campaign, debuting on Rare Disease Day, February 28, to highlight the urgent need for awareness ...

Bruce Leuchter, CEO, Neurvati, discusses the vital role of public participation in healthcare policy, highlighting how ...